Food. It's definitely making a difference. It's shockingly impressive how much physically better I feel at the end of this week. I have also taken up my dosage of eaten marijuana by 20% (5 capsules instead of 4) and maintained that for about a week now. I think that's a contributing factor as well, but it is more likely psychological and long term physical effects rather than the physical changes I've been experiencing. I've, as I mentioned briefly before, gone to a really "clean" diet and it's just feeling really freakin good. I'm impressed. It's all based on my subjective impression of the results but I'm doing my best to self-analyse honestly and actively.
I had previously stepped up to clean, but lately have gone up even more. I was heavier on fruit nuts and berries for my smoothies until the last couple days but I've just upped my vegetable intake a huge amount by discovering I absolutely love veggie shakes that feel amazingly good to drink. Rather than just trying to give a feel for it I'll give a basic account of what I'm trying to eat now. One other worthwhile note is I've started cutting lemon and adding it to all my water and holy crap I'm enjoying it, it's making me drink more water, and giving me tons of vitamin C. I'm changing too many factors to identify exactly what's doing what but that seems to be a beneficial choice. I drink water a TON through the day, and that's an essential part of feeling good. First thing in the morning (as soon as teeth are brushed and mouth is thoroughly cleaned/gargled), I get right into the water and don't stop until bedtime.
So food eaten today:
Breakfast:
Wake up, hot prune juice, very small cup.
Smoothie: baby tomatoes, spinach, broccoli, avocado oil(1 tbsp), hemp hearts, flax seed. I put in about 250ml of water and drank just under a liter. Probably 200g tomatoes, a lot of spinach, and definitely seed heavy as well. I try to keep a high balance of Omega 3 to Omega 6, and Hemp Hearts are 6 high, so I make sure to offset with a good deal of flaxseed which is much more Omega 3 high.
Supplements: fish oil 1g, vitamin D
Brunch:
Smoothie:
300g Raspberries, Spinach, flaxseed, coconut oil (2tbsp), plain skim greek yogurt, water.
Lunch:
6 pc Tuna Sushi Rolls
Supplement: 2g wild salmon fish oil
Dinner: 1/2 size breakfast smoothie, 2 raw eggs.
I do vary things more. Today was a bit of a low grocery day so it looks like I'm eating just the same stuff. The veggie smoothies are new, and they'll in the long term be more evenly rotated between fruit and nut smoothies for nutritional content. My body has just been telling me to eat lots of veggies so I've listened and it's felt really good. That's been a big focus through this whole thing, has been building up my ability to listen to my own body. I definitely don't structure my diet exclusively around feedback or external information, but instead have a set of internal feedback knowledge I use to filter through the external knowledge sources to help decipher which seem appropriate to try and adapt and which don't. Then, following that, I try to make sure to give different things a shot and hope to like them if they seem like they should be healthy. I don't expect to enjoy every meal I eat. I've actually been pleasantly surprised by how much I do enjoy..almost enough to feel weird. I really do like raw eggs..
Back to the main point though. Listening to the body. I think that's really essential in responding appropriately to medical challenges. Build the best understanding of yourself you can. Different things really do work better for different people. I definitely seem to enjoy a reasonably high fat diet, as long as they're easy digestible, usable fats. No hate on animal fats either, just good clean ones. I seem to respond a lot to where the animal comes from. I love wild fish, I love game meat still, but commercial farm meat I really feel like I notice the difference. Maybe knowing about it is just generating that feeling inside me, I really don't know. I'm definitely not going to claim I'm going to never eat any anymore, but I'm going to try to eat clean, varied meat and a lot more other high nutrition substances. I absolutely NEVER would have expected myself to even think about saying that, I used to have special dreams about the blood out of rare steaks.. So it goes!
I've had other areas of that as well. I need to research what's actually happening or my best reckoning of what's happening before I can explain it better, but between stretching, pressure point therapy/tension release, heat therapy, combinations of the above, and keeping the body in a very clean state have combined to make a shockingly large difference in this last week. I'm feeling better now than I was at the start of this cycle of chemo, and this is day 9, when I should be starting to be hit decently. One thing that's very interesting has been the value of really hot showers. I find at long periods I'll get a feeling of pressure at the base of my skull, and alongside that pressure just an extremely vague sense that something's not quite right in my head. If I shower, and keep temperature at an uncomfortably/borderline painfully hot temperature at that point, up and down the neck, and around the head, I'll generate what I think is a release of tension that presents me with a mild neurological stimulative sensation a bit like tingles right into the tips of my fingers and toes, and then when I'm getting hot I press with best pressure I can manage into where I feel the most tension at the base of the skull, and press in pulses. The reason I bother to go through the detail of explaining a slightly less sexual version of playing with myself in the shower is the level of difference it makes. It's hard to fully quantify or explain but it's astonishing. I'll go from feeling not quite right to feeling total clarity and 100%, a huge release of tension, easier to maintain better posture, it's just wicked. Another note is I do actually use that technique, and found that technique in fact, treating injuries and scar tissue deposits in joints/muscles, for tension release. I'd use it on my back/shoulders as best I could, but not so intense. In the morning, drinking a smoothie, a ton of water, then showering and doing that leaves me feeling just great. I still have been holding myself back some on activity level as I wait to move into my new house when it gets set up, and I can get to work on upcoming life projects and stuff. I definitely overtapped for a bit and this high rest period has held some value. I can tell by my sleep periods shortening it's coming to an end though and it's time to start tiring myself out a reasonable amount again.
That will make for more interesting posts. A puppy, some projects, and a picture of what's coming up in life.
An attempt to share the experience of confronting cancer, and trying to live a full life while doing it.
Photo Galleries
The Medical Basics
The Cause: Type 2a Astrocytoma. Growth history very slow. Age unknown.
The Problem: Epilepsy. Minor seizures initially triggered by a very light concussion, which returned over time briefly overcoming Keppra and giving me regular seizures for a few weeks. Stable for 6+ months again now, since day 3 of chemo:
The Medicine:
Keppra: 1500 mg 2xdaily - the basic seizure stopper
http://en.wikipedia.org/wiki/Levetiracetam
The Problem: Epilepsy. Minor seizures initially triggered by a very light concussion, which returned over time briefly overcoming Keppra and giving me regular seizures for a few weeks. Stable for 6+ months again now, since day 3 of chemo:
The Medicine:
Keppra: 1500 mg 2xdaily - the basic seizure stopper
http://en.wikipedia.org/wiki/Levetiracetam
Temodal-165mg/day, 21 on 7 off. The chemo. A newer, more specifically targeted type of chemotherapy.
http://en.wikipedia.org/wiki/Temozolomide
Medical Marijuana - 1g/day edible capsules of refined resin cooked into coconut oil. I also smoke regularly, but recognize that as more of a comfort component. (Smoking is only "medically" justifiable as to be comparable with edible when a quick restoration of levels is needed IMO)
That's a very basic summary. A couple points I need to make: Do NOT read the stats on Astrocytoma and freak out. Mine is so slow growing it took 3 years for them to catch the sign on MRIs, and there's an interesting and complicated potential differentiating point with childhood initial growth. Otherwise, I think the M.M. will need a longer discussion
http://en.wikipedia.org/wiki/Temozolomide
Medical Marijuana - 1g/day edible capsules of refined resin cooked into coconut oil. I also smoke regularly, but recognize that as more of a comfort component. (Smoking is only "medically" justifiable as to be comparable with edible when a quick restoration of levels is needed IMO)
That's a very basic summary. A couple points I need to make: Do NOT read the stats on Astrocytoma and freak out. Mine is so slow growing it took 3 years for them to catch the sign on MRIs, and there's an interesting and complicated potential differentiating point with childhood initial growth. Otherwise, I think the M.M. will need a longer discussion
Getting in Touch
Hey,
I just wanted to be clear to everyone that I'm up for talking about things if you have questions. This message is most important not to my friends and those familiar to me but to anyone who stumbles upon this or is handed it, and is in a situation where they relate to this a bit closer to the heart and would perhaps like to ask some questions, or just vent some of their own story. Feel free to reach me.
Easiest is email: davemjmurphy@gmail.com, but I'm david.murphy98 on Skype as well
I just wanted to be clear to everyone that I'm up for talking about things if you have questions. This message is most important not to my friends and those familiar to me but to anyone who stumbles upon this or is handed it, and is in a situation where they relate to this a bit closer to the heart and would perhaps like to ask some questions, or just vent some of their own story. Feel free to reach me.
Easiest is email: davemjmurphy@gmail.com, but I'm david.murphy98 on Skype as well
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